Charting Equality: Why Demographic Disability Data is Good for Everyone

Executive Summary

This brief covers the basics of demographic disability data collection in health programs – what it means, why it is needed, and how it can be used to improve access to equitable health care for all.  We discuss some common myths and stereotypes that likely influence why government and health entities tend to overlook a need to collect demographic disability data. We also look at current examples of providers, health systems, and states that are working to collect demographic disability data. And finally, we provide some recommendations for how relevant entities could begin to collect this information, which is critical for ensuring that people with disabilities receive equally effective health care.

Click here to open the report on the DREDF website.

Disability Rights Education and Defense Fund (DREDF) is a leading national civil rights law and policy center directed by individuals with disabilities and parents who have children with disabilities. Founded in 1979, DREDF works to advance the civil and human rights of people with disabilities through legal advocacy, training, education, and public policy and legislative development.­

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